I am often asked to describe the experience of raising a child with a disability--to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this........

When your going to have a baby, it's like planning a fabulous vacation trip--to Italy. You buy a bunch of guide books and make your wounderful plans. The Coliseum. The Michelangelo David. The Gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."

"Holland?!?" you exclaim. "What do you mean, Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland, and there you must stay.

The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine, and disease. It's just a differant place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you never would of met.

It's just a Different place. It's slower paced than Italy, less flashy than Italy. But after you've been there for awhile and you catch your breath, you look around.....and you begin to notice that Holland has windmills...Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy....And they're all bragging about what a wounderful time that they had there. And for the rest of your life you will say, "Yes, that's were i was supposed to go. Thats what i had planned."

And the pain of that will never, ever, ever, go away...because the loss of that dream is a very very significant loss.

But.....If you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things...about Holland.